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Within the beautiful Parc Floral de Paris, AFM-Telethon organizes every two years a unique event for those affected by neuromuscular disorders and their families. Over 2200 people from all over France are expected to come in order to get information, exchange experiencies and, share warm and friendly moments.
IDMC10 will join Families’ Day on June 12 from 3:00 p.m (departure by bus from the the Cordeliers conference center at 1:30 p.m). Associations and families that were not participating to IDMC10 may join directly, FREE OF CHARGE, the Families’ Day.
Families’ Day Program
15:00 : Welcome by Laurence Tiennot-Herment (President of AFM-Telethon) + MDA representative (co-founders of the 1st Congress)
15:10 : Synthesis of IDMC10 Scientific Conference by Jack Puymirat and intervention by Frank Bennett (ISIS)
15:30 : Presentation of the Steinert Task Force set up by AFM-Telethon
15:40 : Synthesis of the Associations Workshop by JF Briand and intervention of associations
15:55 : Questions / Answers session, chaired by Alain Geille, Guillaume Bassez and Geneviève Gourdon
The questions will have been collected upstream by the Associations and a selection of 20 + 2/3 additional questions from the audience will be discussed; 2/3 testimonials from families will be presented
17:55 : Conclusion by Laurence Tiennot-Herment – Introduction to the remaining festive events (researchers/patients discussion area / buffet areas)
After the session
At 18:00, the IDMC10 participants will discover the Information Village of the Families’ Day in which more than 130 doctors and researchers, as well as experts of technical aids, care and day to day issues will answer families’ questions.
Not to mention from 19:00, the exceptional French Regions Buffet: a fabulous tour of France’s gastronomic specialties! A unique experience not to be missed!
Back to Porte de Vincennes (Metro L1) by shuttle